October is National Breast
Cancer Awareness Month, an annual health campaign to increase awareness of the
disease and the importance of early detection. Even as we say goodbye to
October, the small shop community is continuing to do its part to support one
of our own who is battling breast cancer.
Kirsten Orcutt Johnson
is a mother of three who is diagnosed with Stage IV breast cancer. Over the
last three years, she has bravely gone through a variety of chemotherapies and
radiation treatments, each more devastating to her body than the last.
While we continue to
hope for miracles, in October 2019, Kirsten’s medical team at Huntsman Cancer
Institute indicated that the tumors in her brain are no longer responding to
the treatments and that there are no viable treatment options remaining. The
news is devastating to her family. Kirsten’s three boys (ages 5, 9 and 12)
deserve a lifetime with their mother; absent the ability to give them that we
would like to give them the gift of quality time.
Hänni
Baatz, “Chief Childhood Magic Maker” behind small shop Wolfe
and Scamp, along with
many other generous small shops, has organized a charity auction this weekend
for Kirsten and her family through the Facebook
group Dinos
Doing Good.
100% of the proceeds
of this small shop auction will go to cover day-to-day living expenses, so
Kirsten and her husband Andrew can focus their energy and efforts on each other
and their boys during this time.
The auction opens today and
runs through November 3, 2019. If you would like to donate a small shop item to
the auction, please sign up here. You
can also donate directly to the Johnson family through
Paypal or Venmo. For more information about Kirsten’s fight, please visit her website. As always, thank you for your support and generosity.
“When I heard she had a brain aneurysm,
my first thought was, I pray she makes it. I can’t do this without her.” Hänni Baatz’s words gave me chills. Hänni,
the “Chief Childhood Magic Maker” behind small shop Wolfe and Scamp, was
referring to Vicki Board, her longtime friend and Wolfe and Scamp social media
assistant.
Vicki and baby Franki Rose, born March 11
On March 11, Vicki
gave birth prematurely to baby Franki Rose at only 34 weeks due to complications
related to HELPP syndrome, a variant of preeclampsia. Franki spent two weeks in
the NICU, but she is (thankfully) thriving. Days after Franki’s release, Vicki
began displaying stroke-like symptoms and her
husband immediately took her to the ER where doctors discovered two brain
aneurysms; one had already ruptured. Statistically, ruptured brain aneurysms are fatal in
about 40% of cases. Of those who
survive, about 66% suffer some
permanent neurological deficit. Vicki
underwent emergency brain surgery on March 29 and remains hospitalized. My
heart goes out to Vicki and her family, including her four year old daughter, Vivi. Can
you imagine what it would feel like to give birth to a preemie and then be
prohibited from even comforting your infant while recuperating from life-threatening
brain surgery? I can’t. The thought is devastating.
Hänni
immediately sprung to action for Vicki and her family, organizing the “Vickisaurus Rex Relief Auction” and helping arrange a
MoneyPool fund to defray mounting medical costs. “It is hard to express just how deeply I
love Vicki,” Hänni shared. “She has helped me through some very hard times, and
for the past three years, there is not one day we haven’t been in touch.”
Now Hänni is
looking to the small shop community to help support Vicki under the most
excruciating circumstances. “This community is like no other community; when
one of us needs help, we all come together to lift that person up. I’m not sure
why this is —maybe it has to do with the labor of making something with your
own two hands and loving the people who appreciate and support all that goes
into it. The work of small shops isn’t really about making money; the work of
small shops is heart work.” How can your
shop help Vicki? “Please consider participating in our auction on April
12-14, hosted in the BTC (‘Be The Change’) Auction Facebook group,”
Hänni implored. “We are gratefully accepting both small shop credits and item
donations, and every dollar earned from those donations will go directly to
Vicki’s family. The secret hope of my heart is to raise $5,000. I know that is
a lot, but it would be life-changing.” Please consider donating to the auction
by entering your shop’s information here.
Losing a child
is a fear that grips my heart at night. On April 15, 2018, Julie Anthony
unexpectedly lost her granddaughter, Aspen. “Aspen was born in August 2017 and
she had the sweetest disposition, a soft little laugh and a bit of a lazy eye
that had not yet been corrected,” Anthony shared. “I struggle to talk about her
in the past tense. For 233 days, we were able to hold her and love
her, and then she was called home to heaven, leaving our family devastated.”
Aspen
Anthony is the
director of Auction for Aspen, a small shop charitable initiative she launched
in September 2018. “In July of 2018, I went to Uganda for two weeks as part of
a short term mission with Imani Milele Children. I had committed to
the mission trip months before losing Aspen. After her passing, I almost
backed out of the trip, but I am so grateful that I followed through,” she
recalled. “During the two weeks I spent in Uganda, I saw a need like nothing I
had ever seen before. I interacted with children who had experienced loss and
hardships that were heartbreaking, yet the smiles on their faces and joy in
their eyes were infectious. I was early in my own grief, just over
three months, and being with these children brought me comfort. I
was longing to hold, nurture and care for a grandchild I had recently lost, and
these children needed someone to love and support them. We just seemed
like a match. I had to do something. The two weeks I was
there working wasn’t enough. I saw a need; I couldn’t just forget about
it.”
Imani Milele Children
Upon her
return home, Anthony decided to raise funds to construct a classroom building
in honor of Aspen. “ I told my husband I had a crazy idea of wanting to
raise $30,000 to fund a classroom building in memory of Aspen but no plan on
how I would ever raise that much money. I then talked to my daughter to
see how she would feel about honoring Aspen’s life in this manner, and when she
began to cry and told me she would love it, I knew even though I didn’t have a
plan, we had to do this.” Anthony’s vision later expanded to three buildings.
“But I still had no idea how we were going to raise the money.”
Inspired by
her sister Elizabeth, a small shop owner, and with encouragement from her sister
Kim (“my biggest supporter and partner in this endeavor”), Anthony launched an
Instagram auction with a goal of raising $3,000. “The response was incredible,
and we raised $10,000! We had never intended to host more than one
auction, but we just finished our third and plan to host another one in the
Fall,” said Anthony. “The outpouring of support was so overwhelming. There
were small shop owners asking what more they could do, telling me they were so
honored to be involved, asking for updates, and quite frankly, sending so much
love that it cushioned the hole in my heart that Aspen left. These
were strangers. People who read Aspen’s story and were willing to generously
rally behind our family. They were willing to join alongside us as we
honor Aspen’s life and change the lives of some other children. I have
been moved to tears by this wonderful community of small shops. The
people behind these shops have warmed my heart and brought tears to my eyes so
many times. They will never know the depths of my gratitude.”
Uganda construction
Construction
in Uganda is already progressing. “In January, construction began on what will
be the first of three buildings in the classroom block of the school. With
funds from our most recent auction, we now have the money needed to fund the
second building in the classroom block. Construction on that
building began last Wednesday. Once all three classroom buildings are completed,
we will begin funding restrooms, teachers’ quarters, dorms, a kitchen and
dining facility, a sick bay, an administration building and a security
fence. It’s a huge undertaking, but with each person that joins alongside
us, the task seems less daunting.”
This small
shop community is incredible. How can you get involved? Anthony offered the
following suggestions:
1. Direct tax-deductible donations can be made here. Imani Milele Children is a 501(3)(c), so donations for both businesses and individuals can be tax-deductible.
2. Anthony is
hosting another Instagram auction this Fall. She needs more small
shop donors and help promoting this event. Anthony is also looking for
interested shops willing to start their own campaigns on Aspen’s behalf. For
example, @theknottedcrown approached her about launching a bow in its shop with
the proceeds going to this project. Anthony will promote all fundraising
endeavors and the shops that host them.
3. And,
finally, Anthony is looking for 24 groups of people (i.e., shops that band
together, school groups, families, churches, etc.) that will try to raise
$6,250 each. She recognizes this is a big ask, but it will go a really long
way. $6,250 is what it will cost to build a small house in
Uganda. There are 24 teachers, so she needs 24 small houses. Anthony
is hoping some groups will “adopt” a teacher and raise the necessary funds to
provide them with a house.
Please
consider joining Anthony’s village and making a donation of any kind in honor
of Aspen. May her memory be a blessing.
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